How Do Rare Eye Conditions Affect Your Vision? - Eye Health Experts
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YouTubeEye Health Experts
How Do Rare Eye Conditions Affect Your Vision? - Eye Health Experts
How Do Rare Eye Conditions Affect Your Vision? Are you curious about how rare eye conditions can impact your vision? In this informative video, we’ll explore various rare diseases that affect different parts of the eye and how they can alter your sight over time. We’ll start by explaining what these conditions are, including those that ...
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Rare Disease Stories
Building patient registries is essential for advancing rare disease research, but it can be challenging for organizations with limited resources. NORD's IAMRARE® platform helps by providing guidance, technical support, and long-term partnership every step of the way. This week, we’re sharing video stories from patient advocacy leaders we work with. First up, The Coalition to Cure Calpain 3 talks about how we helped launch and grow their registry! Learn more about IAMRARE at iamrare.org. | Nation
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Building patient registries is essential for advancing rare disease research, but it can be challenging for organizations with limited resources. NORD's IAMRARE® platform helps by providing guidance, technical support, and long-term partnership every step of the way. This week, we’re sharing video stories from patient advocacy leaders we work with. First up, The Coalition to Cure Calpain 3 talks about how we helped launch and grow their registry! Learn more about IAMRARE at iamrare.org. | Nation
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31K views · 432 reactions | Today is #RareDiseaseDay 2019! Watch and share the official Rare Disease Day 2019 video to see Lorena's story of living with Phelan-McDermid syndrome. Help raise awareness to break isolation for people living with a rare disease! #ShowYourRare National Organization for Rare Disorders, Inc. (NORD) Rare Diseases South Africa Rare Disease UK Rare Voices Australia Canadian Organization for Rare Disorders BBC News The Mighty BBC Stories | Rare Disease Day | Facebook
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31K views · 432 reactions | Today is #RareDiseaseDay 2019! Watch and share the official Rare Disease Day 2019 video to see Lorena's story of living with Phelan-McDermid syndrome. Help raise awareness to break isolation for people living with a rare disease! #ShowYourRare National Organization for Rare Disorders, Inc. (NORD) Rare Diseases South Africa Rare Disease UK Rare Voices Australia Canadian Organization for Rare Disorders BBC News The Mighty BBC Stories | Rare Disease Day | Facebook
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21 reactions · 13 shares | -10 Presenters  -52 Films  -1 Community  This Feb 28th, we come together as one rare disease community - to share stories, insights, and hope. Sign up today: https://link.centogene.com/2Yf0gQf #RareDiseaseDay #RDD | CENTOGENE | Facebook
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21 reactions · 13 shares | -10 Presenters  -52 Films  -1 Community  This Feb 28th, we come together as one rare disease community - to share stories, insights, and hope. Sign up today: https://link.centogene.com/2Yf0gQf #RareDiseaseDay #RDD | CENTOGENE | Facebook
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