“Your baby has MPS1”…The call that changes everything. Learning that your child has a rare disease without a cure. The mission of your life changes with that call. Kennedy is a MPS1 fighter. Learn more of her story this week on our page!🤎 | The Kennedy Ladd Foundation, Inc.
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“Your baby has MPS1”…The call that changes everything. Learning that your child has a rare disease without a cure. The mission of your life changes with that call. Kennedy is a
The Kennedy Ladd Foundation, Inc.. The Kennedy Ladd Foundation, Inc. · Original audio. “Your baby has MPS1”…The call that changes everything. Learning that your child has a rare disease without a cure. The mission of your life changes with that call. Kennedy is a MPS1 fighter. Learn more of her story this week on our page!🤎
58.7K viewsApr 8, 2025
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Lincoln has a rare disease called MPS1, Hurler syndrome. This rare disease affects every aspect of the Body and has no cure. Due to newborn screening for MPS1, we were able to begin treatment on Lincoln as early as three months old. This treatment does not cure the issue, but it does extend life expectancy and increase quality of life. Follow us for more on Lincoln’s story. | The Kennedy Ladd Foundation, Inc.
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Kennedy has a rare genetic disorder called MPS1, Hurler Syndrome. This rare disease has an effect on every aspect of the body and there is no cure. She has had to undergo many surgeries to fight these effects including double hip, double knee, and double ankle surgery last November. She is still learning how to walk after such a large procedure. Children like Kennedy need the hope of a cure. We are on a mission to raise awareness and fund a cure. If you are an MPS family, welcome to our commUNIT
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Kennedy has been struggling with ear infections recently, so it felt appropriate to share this video again!! MPS1 families, what are some of the “little” things that MPS1 impacts?? Let us know in the comments! ⬇️ | The Kennedy Ladd Foundation, Inc.
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