Holly Helm’s life changed forever. “It was like life changed within a blink of an eye,” she explained. “I was completely ...

The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...

On the very day Noa was diagnosed, an experimental gene therapy and clinical trial were posted to treat Canavan disease. Noa was only the third patient in the world to be dosed with the gene therapy, ...

In a symbolic gesture of solidarity, the Rare Disease Ghana Initiative (RDGI) illuminated the Ministry of Health (MoH) building on February 28, 2025, to mark Rare Disease Day.

The Ministry of Health (MoH), alongside key stakeholders, marked Rare Disease Day 2025 on February 28, 2025. The event aimed to raise awareness and advocate for improved healthcare access for ...

Friday is Rare Disease Day, which raises awareness for rare diseases and aims to improve access to treatment and medical representation for individuals with rare diseases and their families.

President Donald Trump is expected to sign an executive order designating English as the official language of the United ...

MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...

Rare Disease Day, observed on Feb. 28, brings attention to uncommon diseases affecting populations of 200,000 or fewer. In ...

Williams, who has performed the National Anthem at baseball stadiums as part of Boehringer Ingelheim’s Breathless campaign, ...

A Lancaster County mother and father are sharing their story in hopes of raising awareness of the uncommon genetic disorder their child is facing. There's no treatment and no cure, but the family is ...

In honor of Rare Disease Day, the Celtics are teaming with Takeda Pharmaceuticals to raise awareness and support for the rare disease community.