Hospice chiefs are concerned about the impact of the rise in employers' national insurance contributions, which the sector ...
Joey showed symptoms of the condition that hits just 30 children every year, and now needs a bone marrow transplant ...
Patients with rare diseases in India, like Saifullah Khalidi with spinal muscular atrophy (SMA), struggle to afford ...
In 2021, the Government of India established Centres of Excellence (CoEs) under the National Policy for Rare Diseases to ...
A WOMAN has revealed her rare condition which makes her “faint” whenever she laughs, cries or is hungover – and once almost ...
The Cherokee Nation is hosting a Rare Disease Summit Nov. 21 to address the unique challenges facing tribal citizens with rare medical conditions.
"St Denis Medical" executive producers tell TheWrap why they were excited to explore comedy in the medical community ...
Chelsea Coombes first realised something was wrong when she was 17 years old and felt her face drop after she laughed ...
The University of Minnesota’s annual Rare Disease Day seminar this year, held at the end of February, explained how patients with rare diseases can utilize telehealth services nationally and ...
While PH Awareness Month is a great opportunity to connect and educate, rare disease advocacy is columnist Jen Cueva's passion all year.
Hunter Mickelson’s parents, John and Brooke, ensure Hunter knows he’s special – one in a million even. In terms of his rare ...