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How a Virginia family fought to bring awareness to their daughter's rare condition: 'It's an emotional thing'
Wednesday marked a milestone in Virginia as Governor Glenn Youngkin recognized the first-ever "Childhood Dementia Day" in the ...
Mother ‘absolutely broken’ after daughter dies from rare genetic disorder
A mother is “absolutely broken” following the death of her two-year-old daughter from a rare genetic condition that also ...
I Suffer From The Most Painful Condition Known To Medicine — And My Life Is A Nightmare
"It is considered more painful than fibromyalgia or giving birth — even more painful than amputating a finger without ...
Experts: Hard to forecast fall conditions as area emerges from rare late-season drought
Temperatures have been unseasonably warm, with Thursday marking the area's 10th straight day with a high of at least 80 degrees. With the calendar noting the first day of fall on Sunday, weather ...
‘I Thought I Had Back Pain, But It Was A Rare Inflammatory Disease With No Cure’
Seven years ago, I woke up with a slight pain in my lower back. The pain was coming from my right hip, but I didn’t think too ...
In ‘Brilliant Minds’ There Isn’t Always A Cure, But ‘There’s A Way Forward,’ Says EP
"Brilliant Minds," based on the work of famed neurologist Dr. Oliver Sacks, is both 'a medical and an emotional procedural,' ...
Day care facility for children with rare genetic diseases opens at NIMS
Managed by the Department of Genetics at NIMS and the Centre for DNA Fingerprinting and Diagnostics (CDFD), the facility will ...
Utah Mom, 33, Has Heart Attack After Walking on Treadmill, 4-Year-Old Son Told His Dad She Was 'Sleeping'
Justine Carter didn't know she had SCAD — a heart condition with no known cause or risk factors — which can strike at any ...
20-Year-Old with 'Butterfly' Skin Disease Is Striving for Independence: 'You Just Gotta Power Through' (Exclusive)
Brandon Joseph, 20, opens up to PEOPLE seven years after his first interview. He talks about overcoming daily challenges and becoming more independent while living with epidermolysis bullosa, a rare ...
KCUR 89.3 FM12d
Genetic testing for rare diseases is hard to find if you live in rural Kansas, but now there's help
Rare diseases are hard to diagnose and often require costly genetic testing and visits to specialists. The testing can be ...
Mother ‘absolutely broken’ after second child dies from rare genetic disorder
A mother is “absolutely broken” following the death of her two-year-old daughter from a rare genetic condition that also ...